About the Walk:
The Walk to Make Cystic Fibrosis History is Cystic Fibrosis Canada’s largest fundraising event where thousands of Canadians walk for a cure or control for cystic fibrosis (CF) in over 70 locations across Canada. It is celebrated annually on the last Sunday in May, Cystic Fibrosis Awareness Month. Since 2005, the Walk to Make Cystic Fibrosis History has raised over $36 million in critical funds for CF research, advocacy initiatives, and high-quality individualized care.
This year, the Walk has been changed to a virtual experience in an effort to keep our community safe during the current global situation caused by the COVID-19 pandemic. This is especially important because people living with cystic fibrosis are at increased risk for COVID-19.
#WalkYourWay4CF
Now that the Walk has gone virtual, Cystic Fibrosis Canada is proud to present the “Walk Your Way” virtual event. Walkers will set a fundraising goal, choose an activity/ challenge of interest to them (with consideration for good social distancing), and share it with their supporters when they do it.
Walkers are encouraged, by the end of Cystic Fibrosis Awareness Month (31st May), to upload their videos and photos of their activity/ challenge to their Walk fundraising page and social media channels using the official Walk hashtags, #walktomakeCFhistory & #walkyourway4CF and #CFcantwait.
On Sunday, May 31st, Cystic Fibrosis Canada will be hosting a virtual “Walk day” with more details to come about what that means.
1) Support from the community is critical during this disconcerting time.
People living with CF are among the most vulnerable to COVID-19. CF Canada continues to invest in accessing life-changing medications, like Trikafta, that could give Canadians living with CF better odds at fighting illnesses.
• The full impacts of the COVID-19 pandemic are yet to be seen, however we are already experiencing loss of revenue at this time and we need the ongoing support of our community to continue funding our critical mission work.
• As a donor-funded organization, we rely on the support and generosity of our donors to fund our mission work. We receive less than 2% of our funding from the government, so donor support is critical to the success of our shared cause.
• We know that #CFcantwait and we rely on fundraising and donations to continue our work, including:
o We remain focused on fighting for better access to medications, because drugs like Trikafta will give people living with CF a better chance of beating COVID-19 and other illnesses.
o More than ever, we are providing 1:1 support through our CF information & referral service and sharing information online
o We are still running our clinical trials network to ensure people have access to new medications.
o We are still boosting CF clinics with our clinic grants program to ensure best possible care for Canadians with CF
• We understand the gravity of the situation faced by the thousands of Canadians living with CF and their loved ones. By registering, fundraising and donating to the Walk, you will help us continue our work to improve the lives and outcomes of people living with CF.
2) Rallying together to facilitate change is something the CF community does well.
• From raising the bar for clinical care coast-to-coast, to getting symptom drugs covered at the provincial level and to advocating for newborn screening, this community knows how to get things done. At this pivotal time for our community, working together to fundraise and spread awareness is more important than ever.
3) The virtual walk/ challenge can be virtually anything!
• You can be creative in your choice of activity for the Walk Your Way virtual event. Walking is certainly a great idea, but some other examples include but are not limited to:
o stair challenges at home
o a push-up challenge
o song-writing/ singing
o artistic expressions
o a walk around the backyard
o a bike ride
• Our only ask is that all participants practice good social distancing and infection prevention precautions, and choose a safe activity/ challenge that won’t lead to injury or over-exertion.
• Note: You might choose a challenge that you do once (e.g. one 10km run), or your challenge might be over a selected number of days (e.g. a 5km run every day for one week)
About cystic fibrosis
• Cystic fibrosis (CF) is the most common fatal genetic disease affecting Canadian children and young adults. It is a multi-system progressive disease that affects mainly the lungs and the digestive system.
• More than 4,370 Canadian children, adolescents, and adults with cystic fibrosis are living with CF, and attend specialized CF clinics.
• In the lungs, where the effects are most devastating, a build-up of thick mucus leads to progressive loss of respiratory function. Mucus also builds up in the digestive tract, making it difficult to digest and absorb nutrients from food.
• Currently, there is no cure for cystic fibrosis.
About Cystic Fibrosis Canada
Cystic Fibrosis Canada is one of the world’s leading charitable organizations committed to finding a cure for cystic fibrosis and is an internationally-recognized leader in funding CF research, innovation, and clinical care.
• We are dedicated to advocating for improved access to life-changing medications, like Trikafta, for people living with CF in Canada and are working towards this as a priority.
• We invest more funding in life-saving CF research and care than any other non-governmental agency in Canada. Since 1960, Cystic Fibrosis Canada has invested more than $261 million in leading research, care and advocacy, resulting in one of the world’s highest estimated median age of survival for Canadians living with cystic fibrosis (52.1 years old). For more information, visit cysticfibrosis.ca.
https://www.facebook.com/pg/CysticFibrosisCanadaPeterboroughChapter/community/
Monday May 25 – Sunday May 31, 2020, check out our facebook page for daily challenges, post to your story and don’t forget to include #walkyourway4CF and #walktomakeCF history. If you want to be posted on the Peterborough Cystic Fibrosis, complete waiver on walk website and send your pictures or videos through Facebook messenger.
| Terry Foster will be completing his 35th walk for Cystic Fibrosis. Terry will be walking 10 km on Sunday May 31, 2020 in support to end Cystic Fibrosis. CF Warrior, Ashlynne, me Terry when she was 3 years old and calls him “Santa Claus for CF”. If you are able to, please donate to Terry’s walk campaign at https://secure.e2rm.com/registrant/TeamFundraisingPage.aspx?LangPref=en-CA&TeamID=902612
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Andrew D’Agostini, “Dagger” is at it again to shut out Cystic Fibrosis. Andrew has made it his mission to bring awareness to Cystic Fibrosis, as well as, end Cystic Fibrosis. Andrew started Saves 4 CF when playing the Peterborough Petes and has continued this initiative with each team he plays on. If you are able to, please donate to Andrew’s walk campaign at
| https://secure.e2rm.com/registrant/TeamFundraisingPage.aspx?LangPref=en-CA&TeamID=901373 |
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